“He was my soulmate”.
A young mum has spoken of her devastating grief after her partner and father of her two-year-old child suddenly died.
Lewis Little suffered from Brugada syndrome, a condition that can cause irregular heart movements and seizures.
Tragically, the rare heart condition killed the 25-year-old in his sleep.
His girlfriend Lisa Lee thought he was snoring on the night of his death, but didn’t realise that the noise was air passing through his lifeless body.
“He looked after me and our son Tyler and literally did everything for us,” heartbroken Lisa, 25, said today.
“The fact that he is not here to look after us is so hard.”
The mum-of-one started a petition to get people with the rare condition fitted with an implantable cardioverter defibrillator (ICD), a device which restarts the heart.
She believes an ICD would have saved her boyfriend’s life.
Her petition has gone viral inside a week and has been signed by more than 8,000 people.
Lisa, of Ashington, Northumberland, said: “The support has been amazing. I never expected so many people to sign it.”
Doting dad Lewis was diagnosed with the condition in 2015 and Lisa said her partner was told he was a low risk sufferer of the disorder.
He lived a completely normal and active life and was not prescribed any medication for the condition.
But tragically in August last year, it claimed his life leaving Lisa to bring up their two-year-old son alone.
Lisa said Lewis had been desperate to receive an ICD, which monitors the hearts rhythms and delivers electric pulses to correct a life-threatening rhythm.
The sales assistant said: “Lewis should be here and would be if he had the ICD fitted. I had to try and get a change.
“It is justice for Lewis and I would not want other families to have to go through it. It can be prevented.”
The happy couple, who were together for five years, had discussed getting married and Lewis promised he would propose once he found full-time employment.
Lisa said: “We spoke about it a lot and we couldn’t wait. We had already chose our wedding song – ‘Nothing’s Gonna Stop Us Now’ by Starship.
“He would sing it to me or when me when he heard it on the radio. We were both really excited.”
Brugada syndrome is an uncommon, but serious, heart condition which can result in abnormally rapid heart rhythms that can cause palpitations or fainting.
The condition is a leading cause of sudden cardiac death in young, healthy people and may not be diagnosed because there are no visible abnormalities.
Lisa’s friend Abbie Lisle helped her launch the petition to help others suffering from the condition.
The 23-year-old said: “Since Lisa lost Lewis she has been contacted by families all across the country and the world.
“She knows someone who has had ICD shocks 14 times all ready. Their life has been saved. Lewis not given that opportunity.”
Lisa needs 100,000 signatures to get the petition discussed in Parliament.
To sign the petition, visit https://petition.parliament.uk/petitions/183704
Source : Chroniclelive